Building a Future
Less than two years after having a stroke, Ryan Edwards is living independently and looking forward to the future.
Ryan Edwards has completed four 5Ks this year and has plans to participate in several more. He’s managed to shave minutes off his walking time and hopes to start jogging in future races. But his greater hope is that just by being out there, he’s leading by example and encouraging someone else.
In October 2024, Ryan, then 30, had a hemorrhagic stroke. As he was getting ready for work one morning, he got lightheaded and lost his balance. After falling a few times over the next several minutes, he realized it was time to call 911.
“That took a lot of courage for me to do because before, I was never one to ask for any kind of help in any way,” he says.
Ryan dragged himself 45 feet to the front door and unlocked it for the paramedics before losing consciousness. In hindsight, he says things could’ve been worse, since 15 minutes earlier, he would’ve been asleep, and 15 minutes later, he would’ve been driving to work. “God's timing was shown in that situation,” he says. “So, I've come to terms, and I'm glad it happened when it did.”
He spent the next 20 days in Huntsville Hospital, 10 of them in the ICU. While there, he had surgery to remove part of his skull to reduce the pressure from the bleeding in his brain.
Ryan’s mom, Terri Edwards, remembers how overwhelmed she felt immediately following Ryan’s stroke.
“I had no idea what to do,” she recalls. “One of our friends in the ICU waiting room that night or the next day said, ‘Well, what's going to happen? Are they going to send him to Shepherd Center?’ And I go, ‘Oh my God, what is Shepherd Center? Where is it? I wanted to crawl under a chair, and I'm not kidding because … I could not see through the next day.”
Once Ryan transferred to Shepherd Center, it didn’t take long for Terri to feel certain they had made the right decision.
“So, we get there, and we're sitting outside of his room because the doctors are still assessing him and getting him settled. And we look like deer caught in headlights,” she recalls. “And I would say nine out of every 10 staff persons, from a janitor to a doctor, a tech, a nurse, whoever, walked by and they would say, ‘Are you okay? Do you need anything? Are you waiting on somebody?’ They would talk to us. And by the end of the first two hours … I knew we were in the right place.”
Terri stayed at the Arthur M. Blank Family Residences while Ryan was inpatient so she could support him throughout his rehabilitation. Her husband and Ryan’s siblings and friends came to visit many weekends and for Thanksgiving and Christmas, but often, it was just team Ryan and Terri, working through the fear and frustration and celebrating small victories with each other and Shepherd staff.
Terri says that it brought her closer to Ryan than ever. “I will take that to my grave as a special time with my son. But,” she jokes, “I do not recommend that kind of bonding.”
Therapy and Beyond
Ryan and his therapists got right to work to rebuild his physical strength and address his cognitive issues. Ryan was using a wheelchair and had weakness in his left side, especially his left arm.
His long-term memory was intact, but his short-term memory was a challenge, as was fatigue from mental strain and difficulty with problem-solving.
“I had planning issues early on in the therapy exercises. I have a bachelor's degree in mechanical engineering. I kind of breezed through high school, in a manner of speaking. And the type of worksheets I was working on in speech therapy, I knew they were easy for me to do, but at the time, it took a lot of mental strain, and that was one of the most frustrating parts,” he recalls.
Other tasks were also a challenge. “I had a very difficult time practicing filling my pillbox and working through my medications, especially during my time at Shepherd Center,” he says. “It took until 3 months after we got back home from Shepherd until I started doing it all by myself without any help.”
Ryan says that all his therapists were fantastic. But other parts of his time at Shepherd stood out as well. For one, he enjoyed getting to know other patients.
“We got to go out to a couple of the restaurants down the street with some other patients, and we got to meet up and make some friends with a couple of the other patients and share experiences with them,” he says. “I think that's really good — getting the patients together is really good.”
And he attended some of the Sunday services led by Shepherd Center’s chaplains, which he said offered “something that I needed to hear in that moment.” One example was a Bible verse from Ecclesiastes.
“’A time to cry and a time to laugh, a time to grieve and a time to dance,’” he reads. “So, especially during that recovery process, there was times that it was perfectly fine to just let it out, cry it out, and then there was times to laugh and then grieve and then have fun and dance, you know.”
Celebrating Milestones
After six weeks as an inpatient in Shepherd’s Brain Injury Rehabilitation Program, Ryan continued therapy at Pathways, Shepherd’s outpatient brain injury rehabilitation program.
When he discharged from inpatient, Ryan was walking with assistance. Terri recalls the day he was able to walk into Pathways independently and how it felt a little like she was sending him out into the world on his own for the first time.
“I dropped him off at Pathways, and they finally cleared him to take his [gait] belt off. Actually, they said, ‘Why do you still have your gait belt on? You don't need that.’ And I'm still holding it or getting ready to grab it. I'm not walking anywhere further than one inch away from him. And so he puts his little drawstring bag on his back, and he walks in. …. And he looked at me, and I said, ‘Bye, Ryan, have a good day. Stay on green,’” she laughs. On a more serious note, she says, “I still walk beside him. If I'm not walking beside him, I'm still looking out of the corner of my eye, watching him. I don't know if I'll ever let that go.”
One of Ryan’s biggest goals was to return to work at the family business, which he partners in with his uncles, so cognitive exercises to help him prepare for the work and build mental stamina were an integral part of his therapy at Pathways.
Ryan started gradually — working half days when he wasn’t doing therapy — and now he works close to 40 hours a week, sometimes taking a power nap in the middle of the day if he needs it.
“We're in manufacturing, and I do a lot of 3D modeling and project managing. And before my stroke, I was able to do a lot of the manual labor work, fill in, but I just do a lot more computer work now.”
Ryan lived with his parents for close to a year and a half after being discharged from Shepherd. Then he bought a house close to work and to his parents’ home. He and his mom both say that managing the process of selling his old house and buying a new one is a testament to how far he has come in his recovery.
“Really, what affected him most from the stroke, brain-wise, was his processing skills. But he's doing so much better,” Terri says.
Ryan moving into his own place was another moment when Terri felt like she had to let go a bit and let Ryan do things for himself.
“I knew once he got in his own house, I'm going to have to stay away. He's going to have to figure things out and ways to do things differently … But I think he's really enjoying his independence again, of course, and I am too. I feel independent again, too.”
It’s a milestone that Terri admits she had a hard time even imagining in the early days after Ryan’s stroke.
“His speech therapist at Shepherd Center said, the first time she met him, ‘What is your goal? … Is your goal to live independently again?’ And … I'm sitting there looking at him, going, ‘How is this going to happen,’ you know? And now it's happened. So, I'm very grateful.”
At this point in their journey, Terri reflects on the early days and what advice she'd give to others in a similar situation.
“Now that I look back, I feel like it's not that I didn't have hope. I just didn't know how to look past the next 24 hours. But always have hope. There's always hope.”
As for Ryan, he has his eye out for his next 5K — he walked the first one with his mom, but now, Terri’s proud to say, he’s doing it on his own, with friends.
Now that he’s gotten back to work and driving, he’d like to start dating. He says he’s put an emphasis on faith playing a central role in his life, and he’s hopeful for the future.
“I know that word [hope] had a lot of weight in the hospital. It is just the envisioning myself getting back to work, getting back to drive, and being back home, living by myself, and then working on finding a woman to be in a relationship with and build a family.”
Written by Ruth Underwood
With five decades of experience, Shepherd Center provides world-class clinical care, research, and family support for people experiencing the most complex conditions, including spinal cord and brain injuries, multi-trauma, traumatic amputations, stroke, multiple sclerosis, and pain. An elite center ranked by U.S. News as one of the nation’s top hospitals for rehabilitation, Shepherd Center is also recognized as both Spinal Cord Injury and Traumatic Brain Injury Model Systems. Shepherd Center treats thousands of patients annually with unmatched expertise and unwavering compassion to help them begin again.