By Kimberly Miechiels, PA
Physician Assistant, Shepherd Center Multiple Sclerosis Institute
You were just diagnosed with multiple sclerosis (MS). The first thing to know is that you are not alone.
More than 2.3 million people are living with MS, which is an unpredictable illness. It is a demyelinating disease that affects the central nervous system, which includes the brain, spinal cord and optic nerve. When demyelination – damage to the myelin sheath that surrounds neurons – happens, nerve fiber signals are disrupted. This disruption can lead to sensory or motor symptoms including fatigue, cognitive deficits, numbness and paralysis.
Now that you have a name for your symptoms, what should you do next? First, don’t allow yourself to be overwhelmed. Instead, take baby steps. Second, find a provider who is knowledgeable about MS. MS treatments, research and understanding of immunology and epidemiology is rapidly changing, so it’s essential to have an expert on your side.
Here’s a list of things to consider as you start this journey of your new normal:
Establish a Support System
Everyone’s MS journey is different. No two people will have the same disease course. While it’s great to talk to other people to gain insight, it’s important to always make the right decision for you. Just because your co-worker is doing great with an injectable medication doesn’t mean it makes sense for a person who is afraid of needles. Remember: Treatment options are only good if you take them. Know who you are and what you are capable of doing.
Early in your diagnosis, spend time educating yourself. Education can calm the nerves of uncertainty. Go to support groups, attend pharmaceutical dinners and ask questions of your MS team. Remember: Knowledge is power. Even though you can’t ultimately control how MS will affect you, you can control how you will face it. Be educated. Be empowered. Be hopeful.
More information on Shepherd Center’s Andrew C. Carlos Multiple Sclerosis Institute is available here.
KIMBERLY MIECHIELS is a practicing physician assistant at the Andrew C. Carlos Multiple Sclerosis Institute at Shepherd Center. She holds a master’s of medical science degree from Emory University and a bachelor’s degree from Michigan State University. She has been a board certified physician assistant since 1996. She is actively involved in the multiple sclerosis (MS) community as a respected speaker and contributing member to multiple monographs on MS. Her area of expertise is MS and rehabilitation, especially spasticity and the role it plays in disability.
Shepherd Center, located in Atlanta, Ga., is a private, not-for-profit hospital specializing in medical treatment, research and rehabilitation for people with spinal cord injury or brain injury. Founded in 1975, Shepherd Center is ranked by U.S. News & World Report among the top 10 rehabilitation hospitals in the nation and is a 152-bed facility. Last year Shepherd Center had 965 admissions to its inpatient programs and 571 to its day patient programs. In addition, Shepherd Center sees more than 6,600 people annually on an outpatient basis. For more information, visit Shepherd Center online at www.shepherd.org